Hello, everyone. I realized that it’s been six months since my last blog post, as I mentioned in my other two blog posts earlier this year. I have been having some health issues that I’ve been dealing with since the spring of last year. I have plantar fasciitis, and I have had this since I was seventeen. Unfortunately, this time around, it has been so bad that even just getting a new pair of orthotics hasn’t been doing it anymore. I have been going for massages for just about a year now. I have also recently been going to physiotherapy to do shockwave therapy. That has been helping me tremendously with my recovery. I have also been following instructions from my physiotherapist with multiple stretches to help strengthen my feet. I tried returning to work in the spring, but unfortunately, that didn’t work well. I was only able to work for maybe two hours, and then I started having excruciating pain in my feet and back. So, I had to make the most difficult decision of giving work my notice. I had been working there for six years, and they were fantastic, teaching me new skills and giving me time off for vacation. So that made my decision very challenging.
This year has been challenging. So far, I have been taught that I need to slow down and take care of my physical health. The other thing that has been hard for me to learn this year is patience. I fully admit that I have never been a patient person in my entire life. I am always the person that wants to get things done quickly. Knowing that my feet will take longer to heal than I like is frustrating. It has taken a toll on my mental health again. I have been feeling very depressed because there have been days where I feel like this will never get better. There have been days where I haven’t wanted to get out of bed in the morning. I have also been doubting myself lately about everything going on. I have been trying my best to be positive when I can.
One helpful thing has been being able to Zoom chat with other adults who have Kabuki syndrome every month. I have started to get more involved with other individuals who have the same syndrome as me through The Kabuki Syndrome Foundation. We started doing these chats in the spring. It has been so lovely to be able to connect and talk about things that we are going through with our syndrome.
I look forward to our Zoom calls whenever I can make them. Everyone has supported each other through the good and the bad, which makes a huge difference. It’s great that we can do these Zoom calls when everyone is all over the world. Sometimes, the different time zones can make it harder for everyone to make each Zoom call. I am just grateful to be a part of this great community. It’s so unique that I can say that I am part of the Kabuki Syndrome community.
Now that I am no longer working, I have been trying to do some creative writing. It was hard at first trying to get myself to do anything, but I am slowly trying to get back to doing what I love doing, and you all know creative writing has been important to me. I have been working on something for a long time and am not ready to share it with you yet. I’m hoping to share it with you all very soon! Anyways, thank you for taking the time to read my blog posts. It means the world to me to be able to share my story. All I hope is that I can help someone else with their disabilities or even mental health struggles. Take care, everyone,
~Crystal~
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